A parent-driven support system for families that would like to talk about issues and strategies that help to improve the lives of the family and their child.
An open forum of discussion is supported at these events.
This groups usually meets in odd-numbered months on the second Wednesday, from 9:30-11am: July, September, November (3rd Wed. this month due to Veteran's Day holiday). January, March, May.
This group is a collaborative effort with Family & Children Services. http://www.fcservices.org/ . Information about their Deaf and Hard of Hearing Program can be found at http://www.fcservices.org/programs/program_deaf.html .
Additional Resources
The Let Them Hear Foundation helps hearing-impaired individuals to H.E.A.R., specifically those lacking adequate access to funding and healthcare resources. http://www.letthemhear.org Articles on their site are at:
http://www.letthemhear.org/articles/articles/
Announcement August 2010: Free Heart Screening for Children with Hearing Loss
Some infants and children with severe to profound hearing loss may have a serious heart problem. If not found in time, some children may die suddenly from an irregular heartbeat. A simple, non-invasive test (an ECG) may be able to identify children at risk. A two-year study, funded by the National Institutes of Health, makes it possible for all qualified children to be screened free of charge. The screening appointment is brief, the ECG does not hurt, and home visits are available. Families will receive a gift card for their participation. Even if children have had a prior ECG, it is still important that they be screened. English and Spanish-speaking staff available.
To be eligible for the free screening, children must have a birthday of August 1, 2005 or later, and have severe to profound sensorineural hearing loss.
For More Information, please visit www.infant-heart.com, email jlnsresearch@yahoo.com, phone (408)885-4415 or toll-free (877)221-8210.