Seizure Support and Information

Special Events Only

A resource packet to acquaint families with epilepsy and seizure disorders is available by calling our office at (408) 727-5775. If you would like to speak to another parent that has a child with similar issues, don't hesitate to call us to request a parent match.

Online Tools:

A great seizure log from UCSF http://developmentalmedicine.ucsf.edu/odpc/docs/word/charts_and_forms
/self-advocates/seizure%20tracking%20chart_detail.doc

"The Epilepsy and Seizure Disorder Guide: A Resource Guide For Parents" is now available! An electronic version (PDF format) of the Guide can be accessed:

Children are one of life’s greatest gifts. As parents, we want to do all we can to nurture and take care of our children. As a parent of a child with epilepsy, also referred to as seizure disorders, you face the additional challenge of learning as much as you can about your child’s special needs. This Guide was written with you in mind. It was written to give you some very basic information, including an introduction to epilepsy and seizure disorders. It is not intended to provide medical advice. Any questions related to the medical treatment of your child should always be addressed to your child ’s pediatrician/family physician or neurologist.

While this Guide may not provide all of the information you are looking for, it should help you begin your search. Throughout ( this Guide) , we include information about additional resources that we hope will be useful as you begin this journey – a journey that is likely to evolve as you become more knowledgeable about your child’ s condition. Clearly not every parent needs or seeks the same information, so take from this information what applies and is of value to you and your child.

Our PHP Library has a wealth of videos and books on the topic of seizure disorders and our librarian is happy to assist you in locating them. There are many other resources that are available to assist you.