Williams Syndrome Association

Information updated on Monday, October 19th 2020, 19:50
Services
Camps: Summer, Overnight
Disability Awareness and Advocacy
Financial Support
Online Learning - blogs, resources, webinars, apps
Online Social Network
Research Institute or Funding
Workshops, In-Person Training, Classes
The Williams Syndrome Association (WSA) was formed in 1982 by, and for, families of individuals with Williams syndrome.
 
The WSA is the most comprehensive resource for people and families living with Williams syndrome as well as doctors, researchers and educators.  The WSA provides resources, support and the latest medical information to help your child today and throughout his/her life.  By joining, you’ll become part of the largest organization dedicated to improving the lives of people living with Williams syndrome.
 
No matter the age or stage of your family member with WS, you are not alone.  The WSA offers support and will help you navigate the challenges from diagnosis through adulthood.
 
If your child exhibits the following characteristics, he or she may have Williams syndrome.  
  • Medical – Heart or blood vessel problems (narrowing in aorta or pulmonary arteries), hypercalcemia (elevated blood calcium levels), low birth weight/slow weight gain, colic during infancy, kidney abnormalities, musculoskeletal problems (low muscle tone/joint laxity, joint stiffness) and feeding problems.
  • Physical – Characteristic facial appearances that in young children include a small upturned nose, wide mouth, full lips, small chin and puffiness around the eyes.
  • Personality – Overly friendly, excessively social personality and relatively strong expressive language skills.
  • Developmental – Developmental delays, learning disabilities, attention deficit hyperactivity disorder. 
 
The programs of the Williams Syndrome Association are designed to support individuals with Williams syndrome, their parents, and the professionals working with our children.
 
Programs are provided at both the national and regional level.
 
At the national level, the WSA provides:
  • Bi-annual national convention
  • International professional conference
  • WSA GANG & Dream Team workshops
  • Music & Enrichment camps
  • Scholarship programs
  • Research grants
  • Resource libraries
At the regional level, programs include:
  • One day regional conferences

Sierra region contact info:

Doaa Hamed – California

Email: dhamed@williams-syndrome.org
Phone: 408-931-1625