PACDD, Parents and Caregivers of Adult Children with Developmental Disabilities, is designed to meet the needs of the parents and caregivers, including adult siblings, of adults with developmental disabilities. Join other parents and family caregivers with adult children with a variety of developmental disabilities, including autism. 

How PACDD helps: 

The Yahoo group is a great way to exchange and look for ideas from other parents. Click to join pacdd the Parents of Adult Children Yahoo Group.

Come to a meeting.

If you need information prior to an upcoming meeting or Parent Coffee, simply call the PHP office at 408-727-5775 and you will be routed to someone that is able to serve you.

Below you will find  information that most families having a son or daughter with a developmental disability have found helpful through their journey. Much of the information comes directly from PHP families so if you see something missing that you know about, please email trudy@php.com to have it added.

Sign Up For our Newsletter! http://www.php.com/enews

Keeping it Honest: Progress for Providers - checking your progress in using person centered approaches (managers) is a self-assessment tool is for managers to use individually and with their team. 

State & Federal Benefits 

Public Benefits - SSI and Medi-Caid

• Finances How To Apply For Social Security Disability Benefits
• What is SSI for a person with a disability?
• Nearing Retirement?  The benefits status of your child's SSI eligibility may change when you retire or become disabled.  This may also affect the status of Medi-Cal for your son or daughter but can be continued if you act on notice.  Read more about this at http://www.ssa.gov/dibplan/dacpage.shtml

Medi-Cal and the Estate Recovery Program: This link takes you to a nice and clear video about how to protect third party assets. http://biernathlaw.com/index.aspx?TypeContent=CUSTOMPAGEARTICLE&custom_pages_articlesID=1272

Visit to see a video about working adults with developmental disabilities. http://www.dds.ca.gov/WeInclude/Index.cfm

There are many plans that help working individuals with disabilities and there are folks out there to help through the 104 Work Incentives Planning and Assistance (WIPA).

The projects across the U.S. and the U.S. territories work with SSA beneficiaries with disabilities on job placement, benefits planning, and career development.

WIPAs are authorized to serve all SSA beneficiaries with disabilities, including transition-to-work aged youth, providing benefits planning and assistance services on request and as resources permit.

Link to all WIPA offices in the US: https://secure.ssa.gov/apps10/oesp/providers.nsf/bystate

Santa Clara County:http://www.cidsanmateo.org/programs_ssoutreachSC.html 

Ticket to Work Program http://www.ilr.cornell.edu/edi/m-wise-webinars.cfm

Working Disabled 250+ Program - Power Point with Audio
http://www.onlineconferencingsystems.com/chiip/archived_webinars.htm

Selective Service Forms that young men receive at 18. Read about what to do.

We have a Yahoo! Group Click to join pacdd

Health Care Services

Private Health Insurance May Be Available Through Your Employer - Continued through Adulthood
Check with your employer for a Disabled Dependent Waiver. Not all employers provide this but many do for both health and dental coverage.

Does your child require a higher level of support in order for you to keep him/her at home?  Check out the Waiver Programs.
HCBS Waivers allow states that participate in Medicaid, known as Medi-Cal in California, to develop creative alternatives for individuals who would otherwise require care in a nursing facility or hospital. Medi-Cal has an agreement with the Federal Government, which allows for waiver services to be offered in either a home or community setting. The services offered under the waiver must cost no more than the alternative institutional level of care. Recipients of HCBS Waivers must have full-scope Medi-Cal eligibility.

http://www.dhcs.ca.gov/services/Pages/HCBSWaiver.aspx

Mental Health Services for Adults with Developmental Disabilities
Call 1-800-704-0900 Visit: http://www.hopeservices.org/professionalcounseling.php

• Make sure you have your son/daughter's Social Security Number and Date of Birth. They will verify the Medi-Cal status.
• If you have private insurance, you must first receive a denial of services from them.

Have a Health Insurance Problem?  Call: California Department of Insurance Protecting California's Consumers

Know a Doctor, Dentist, Therapist or are you looking for someone?

Find health care, psychiatric, counseling, and other services provider that other families have shared via our online survey. 

If you haven't yet shared a provider that you feel works well with adults with developmental disabilities, Please Share Now. 

To access the list, you must have a password.  Please contact PHP and join our mailing list to gain access to this list.

Sexuality, Risk Reduction & Other Social Needs

Interviews with Dave Hingsburger:  http://www.farnorthernrc.org/mylifemychoice/Hingsburger%20Speaks.htm  

Awesome listing of articles on related topics http://ici.umn.edu/products/impact/232/  

Sexuality and Developmental Disability: A Guide for Parents

Sex Education http://www.sexualityandu.ca/teachers/tools-10-1.aspx

What about S-E-X-U-A-L-I-T-Y? This link has a Q&A area which is answered by sex educators.

Social Boundaries class using the CIRCLES®: Intimacy & Relationships curriculum: Teaches social distance & levels of intimacy; lays the foundation for people with disabilities to manage personal responsibility & social integration

What is person centered all about? Visit:  http://www.youtube.com/watch?v=tvANuym5VXY

• Planning
• How to Choose a Supported Living Agency
• Screening Information
• Essential Life Planning: Writing Your Plan based on the work of Michael Smull

• 5/21/08 Overheads from meeting on Family Involvement/Parent Directed Services
• 7/28/11 In Home Support Services Powerpoint Presentation
• Disability Rights California - Protective Supervision Information http://www.disabilityrightsca.org/pubs/527601.htm