- 9:00AM - "Advancing Our Futures: Summit of the Disability Collaborative of Santa Clara County" - San Jose
PACDD, Parents and Caregivers of Adult Children with Developmental Disabilities, is designed to meet the needs of the parents and caregivers, including adult siblings, of adults with developmental disabilities. Join other parents and family caregivers with adult children with a variety of developmental disabilities, including autism.
There are two virtual ways to connect to PHP if you have an adult child!
Are you an adult sibling? Visit http://www.php.com/support/siblings-siblings - You are also welcome at the PACDD meetings!
Receive monthly meeting updates by clicking here
If you need information prior to an upcoming meeting or Parent Coffee, simply call the PHP office at 408-727-5775 and you will be routed to someone that is able to serve you.
Below you will find information that most families having a son or daughter with a developmental disability have found helpful through their journey. Much of the information comes directly from PHP families so if you see something missing that you know about, please email firstname.lastname@example.org to have it added.
Sign Up For our Newsletter! http://www.php.com/enews
Another good online resource http://www.preparingforadulthood.org.uk/what-we-do/wider-support
State & Federal Benefits
Public Benefits - SSI and Medi-Caid
Medi-Cal and the Estate Recovery Program: This link takes you to a nice and clear video about how to protect third party assets. http://biernathlaw.com/index.aspx?TypeContent=CUSTOMPAGEARTICLE&custom_pages_articlesID=1272
Getting Ready for Work - A Person Centered Notebook
The "I Want To Work" workbook is designed to assist people with intellectual disabilities gather information that they can use to obtain employment.
Might your child work and have SSI or SSDI? Yes!
There are many plans that help working individuals with disabilities and there are folks out there to help through the 104 Work Incentives Planning and Assistance (WIPA).
The projects across the U.S. and the U.S. territories work with SSA beneficiaries with disabilities on job placement, benefits planning, and career development.
WIPAs are authorized to serve all SSA beneficiaries with disabilities, including transition-to-work aged youth, providing benefits planning and assistance services on request and as resources permit.
Link to all WIPA offices in the US: https://secure.ssa.gov/apps10/oesp/providers.nsf/bystate
Ticket to Work Program http://www.ilr.cornell.edu/edi/m-wise-webinars.cfm
Selective Service Forms that young men receive at 18. Read about what to do.
We have a Yahoo! Group Click to join pacdd
Health Care Services
This IDD Toolkit is a website devoted to information for the primary care of adults with intellectual and developmental disabilities. The online toolkit offers health care providers best-practice tools and a wealth of information regarding specific medical and behavioral concerns of adults with IDD, including resources for patients and families. http://vkc.mc.vanderbilt.edu/etoolkit/
Mental Health Services for Adults with Developmental Disabilities
Make sure you have your son/daughter's Social Security Number and Date of Birth. They will verify the Medi-Cal status.
Have a Health Insurance Problem? Call: California Department of Insurance Protecting California's Consumers
Know a Doctor, Dentist, Therapist or are you looking for someone?
Find health care, psychiatric, counseling, and other services provider that other families have shared via our online survey.
If you haven't yet shared a provider that you feel works well with adults with developmental disabilities, Please Share Now.
To access the list, you must have a password. Please contact PHP and join our mailing list to gain access to this list.
Sexuality, Risk Reduction & Other Social Needs
Interviews with Dave Hingsburger: http://www.farnorthernrc.org/mylifemychoice/Hingsburger%20Speaks.htm
Awesome listing of articles on related topics http://ici.umn.edu/products/impact/232/
Sex Education http://www.sexualityandu.ca/teachers/tools-10-1.aspx
What about S-E-X-U-A-L-I-T-Y? This link has a Q&A area which is answered by sex educators.
Social Boundaries class using the CIRCLES®: Intimacy & Relationships curriculum: Teaches social distance & levels of intimacy; lays the foundation for people with disabilities to manage personal responsibility & social integration
What is person centered all about? Visit: http://www.youtube.com/watch?v=tvANuym5VXY
Keeping it Honest: Progress for Providers - checking your progress in using person centered approaches (managers) is a self-assessment tool is for managers to use individually and with their team.
Since we aren't going to live forever, none of us, this link provides life/end of life planning for our adult children in an easy to use and free on their website, booklet: http://www.coalitionccc.org/_pdf/Thinking_Ahead_English_web.pdf. The Coalition for Compassionate Care has developed many tools for life planning. Visit their site at http://www.coalitionccc.org/thinking-ahead.php
Great tools to use with transitioning adults!
Looking for Affordable Housing? Try this link http://www.dds.ca.gov/AH/CoalitionsAgencies.cfm for a state listing of agencies that may be able to assist.