Adult Children with Developmental Disabilities (PACDD)

PACDD, Parents and Caregivers of Adult Children with Developmental
Disabilities, is designed to meet the needs of the parents and caregivers,
including adult siblings, of adults with developmental disabilities. Join other
parents and family caregivers with adult children with a variety of
developmental disabilities, including autism. 

There are two virtual ways to connect to PHP if you have an adult
child! 

Are you an adult sibling? Visit 
http://www.php.com/support/siblings-siblings 
-
You are also welcome at the PACDD meetings!

Communicate with other families via our Yahoo Group.  

http://groups.yahoo.com/neo/groups/pacdd/info

Receive monthly meeting updates by clicking
here

If you need information prior to an upcoming meeting or Parent
Coffee, simply call the PHP office at 408-727-5775 and you will be routed to
someone that is able to serve you.


Below you will find information that most families having a
son or daughter with a developmental disability have found helpful through
their journey. Much of the information comes directly from PHP families so if
you see something missing that you know about, please email trudy@php.com to
have it added.


Download the Transition Checklist

This is a comprehensive list of resources with an explanation of
the service, documents needed to apply, age to apply, overview of services and
other general information. Download
the checklist now


 

Sign Up For our Newsletter! http://www.php.com/enews

Another good online resource 
http://www.preparingforadulthood.org.uk/what-we-do/wider-support 

 


State & Federal Benefits 

Public Benefits - SSI and Medi-Caid

Receiving SSI and Working?

Report Wages using an easy to use app found at http://apps.usa.gov/ssi-mobile-wage-reporting.shtml 

Medi-Cal and the Estate Recovery Program: This link takes you to a
nice and clear video about how to protect third party assets. http://biernathlaw.com/index.aspx?TypeContent=CUSTOMPAGEARTICLE&custom_pages_articlesID=1272


 

Getting Ready for Work - A Person Centered Notebook

The "I Want To Work" workbook is designed to assist
people with intellectual disabilities gather information that they can use to
obtain employment. 

 http://www.personcenteredpractices.org/work_workbook.html


 

Might your child work and have SSI or SSDI?  Yes!

There are many plans that help working individuals with disabilities
and there are folks out there to help through the 104 Work Incentives Planning
and Assistance (WIPA).

The projects across the U.S. and the U.S. territories work with
SSA beneficiaries with disabilities on job placement, benefits planning, and
career development.

WIPAs are authorized to serve all SSA beneficiaries with
disabilities, including transition-to-work aged youth, providing benefits
planning and assistance services on request and as resources permit.

Link to all WIPA offices in the US:https://secure.ssa.gov/apps10/oesp/providers.nsf/bystate

Ticket to Work Program http://www.ilr.cornell.edu/edi/m-wise-webinars.cfm

Working Disabled 250+ Program - Power Point with
Audio

http://www.onlineconferencingsystems.com/chiip/archived_webinars.htm


 

Selective Service Forms that young men
receive at 18. Read
about what to do.


 

We have a Yahoo! Group Click
to join pacdd

 

Health Care Services

Private Health Insurance May Be Available Through Your Employer -
Continued through Adulthood

Check with your employer for a Disabled Dependent Waiver. Not all
employers provide this but many do for both health and dental coverage.

This IDD Toolkit is a website devoted to information for the
primary care of adults with intellectual and developmental disabilities. The
online toolkit offers health care providers best-practice tools and a wealth of
information regarding specific medical and behavioral concerns of adults with
IDD, including resources for patients and
families. http://vkc.mc.vanderbilt.edu/etoolkit/

Does your child require a higher level of support in order for you
to keep him/her at home?
  Check out the Waiver Programs.

HCBS Waivers allow states that participate in Medicaid, known as
Medi-Cal in California, to develop creative alternatives for individuals who
would otherwise require care in a nursing facility or hospital. Medi-Cal has an
agreement with the Federal Government, which allows for waiver services to be
offered in either a home or community setting. The services offered under the
waiver must cost no more than the alternative institutional level of care.
Recipients of HCBS Waivers must have full-scope Medi-Cal eligibility: http://www.dhcs.ca.gov/services/Pages/HCBSWaiver.aspx.
This form http://vkc.mc.vanderbilt.edu/etoolkit/wp-content/uploads/TodaysVisit.pdf
is especially nice to complete and take to the doctor's office.

 

Mental Health Services for
Adults with Developmental Disabilities

Call 1-800-704-0900 Visit: http://www.hopeservices.org/professionalcounseling.php

Make sure you have your
son/daughter's Social Security Number and Date of Birth. They will verify the
Medi-Cal status.

  • If you have
    private insurance, you must first receive a denial of services from them.

 

Have a Health Insurance Problem
Call: California
Department of Insurance Protecting California's Consumers

Great listing of forms 

http://odpc.ucsf.edu/odpc/html/for_self_advocates/charts_and_forms.htm#overlay-context=odpc/html/for_clinicians/charts_forms_c.htm  


 

Know a Doctor, Dentist, Therapist or are you looking for someone?

Find health care, psychiatric, counseling, and other services
provider that other families have shared via our online survey. 

If you haven't yet shared a provider that you feel works well with
adults with developmental disabilities, Please Share Now

To access the list, you must have a password.  Please contact
PHP and join our mailing list to gain access to this list.

View the list now if you have the password. (pacdd)

Once in, click Browse
Responses
 in the upper right hand corner
 to see the
submissions for each response. Otherwise, you see only a summary of all the
responses.



Sexuality, Risk Reduction & Other Social Needs

Interviews with Dave
Hingsburger:
http://www.farnorthernrc.org/mylifemychoice/Hingsburger%20Speaks.htm 

Awesome listing of articles on related topics http://ici.umn.edu/products/impact/232/  

Sexuality
and Developmental Disability: A Guide for Parents

Sex Education http://www.sexualityandu.ca/teachers/tools-10-1.aspx

What about S-E-X-U-A-L-I-T-Y? This link has a Q&A area which is
answered by sex educators.

Social Boundaries class using the CIRCLES®: Intimacy &
Relationships curriculum
: Teaches social distance & levels
of intimacy; lays the foundation for people with disabilities to manage
personal responsibility & social integration


 

Life Planning

What is person centered all about? Visit:  http://www.youtube.com/watch?v=tvANuym5VXY

Keeping it Honest: Progress for Providers - checking your
progress in using person centered approaches (managers) is a self-assessment
tool is for managers to use individually and with their team. 

Since we aren't going to live forever, none of us, this link
provides life/end of life planning for our adult children in an easy to use and
free on their website, booklet: 
 http://www.coalitionccc.org/_pdf/Thinking_Ahead_English_web.pdf.
The Coalition for Compassionate Care has developed many tools for life
planning. Visit their site at http://www.coalitionccc.org/thinking-ahead.php  



Get the life you want:  http://www.gmsavt.org/index.php?option=com_content&view=article&id=32&Itemid=4

Great tools to use with transitioning adults! 



PowerPoint & Other Useful Links from previous events.

Independent Living

The
ILRU (Independent Living Research Utilization) program is a national center for
information, training, research, and technical assistance in independent
living. Its goal is to expand the body of knowledge in independent living and
to improve utilization of results of research programs and demonstration
projects in this field. It is a program of TIRR (The Institute for Rehabilitation
and Research), a nationally recognized medical rehabilitation facility for
persons with disabilities. Index of On-Demand Trainings:  http://ilru.org/html/training/webcasts/archive/index.html 



Looking for Affordable Housing
? Try this link  http://www.dds.ca.gov/AH/CoalitionsAgencies.cfm for
a state listing of agencies that may be able to assist.  



There is an outside and ongoing support group for parents who are
-- or will be -- parenting their children beyond 18, primarily those with
autistic spectrum disorder, bipolar, serious learning disorders, and other
issues that continue to challenge the child through adulthood. Find details at:
http://www.meetup.com/EvoLibri/events/15971085/?a=_yes&rv=md1o

 

 

Contact: 
Community & Family Services Department
Phone: 
408-727-5775
Email Address: 
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