Prader-Willi California Foundation

Information updated on Thursday, January 18th 2024, 13:05
Services
Advocate-School District, Regional Center, Insurance
Disability Awareness and Advocacy
Financial Support
Online Learning - blogs, resources, webinars, apps, telehealth
Online Social Network
Parent to Parent Support - Information, Referral, Mentoring
Research Institute or Funding
Support / Self Help Groups

Prader-Willi California Foundation (PWCF) was established in 1979 as a non-profit, charitable organization by parents of persons with Prader-Willi syndrome. PWCF is an affiliate member of the national Prader-Willi Syndrome Association (USA). Our founders’ aspirations were to improve the educational and residential quality of life of individuals born with the syndrome.

website for USA association is: http://www.pwsausa.org/

Today, PWCF is over 800 members strong. Our mission continues to be to provide to parents and professionals a state network of information, advocacy, and support services to expressly meet the needs of children and adults with Prader-Willi syndrome and their families. Members are parents, friends and relatives of persons with Prader-Willi syndrome, as well as many dedicated professionals and care providers. Together, we are helping individuals born with Prader-Willi syndrome live meaningful and productive lives and pursue their individual hopes and dreams to the full extent of their talents and capabilities.

How we help

Prader-Willi California Foundation provides the following comprehensive range of services: