Sickle Cell Anemia Awareness
Established in 2014 after the death of our founder and CEO’s son, SCAASF is deeply invested in improving the quality and access of SCD care. We advocate for our client members in and out of the hospital, teach advocacy strategies, and work to establish a Sickle Cell Care & Resource Center in San Francisco. Our work has received certificates of honor and recognition from Senator Weiner and Mayor Lee.
Mission:
To broaden public awareness about Sickle Cell Disease, advocate for clients and SCD community at large for access to quality compassionate healthcare, empower through education and lastly, establish a Sickle Cell Care & Resource Center in San Francisco.
Vision:
Our vision is to work collectively with key stakeholders as a united voice to develop positive strategies for improvement in healthcare and create a more comprehensive experience for the clients and their families.
Our Objective:
Our objective is to clarify the needs of the people living with sickle cell disease and remove the stigmas and biases. The keys to improvement is trust, communication, compassion and quality care. Further education for clinicians, physicians and healthcare providers would be tremendously helpful. As we strengthen those areas and reinforce the use of effective listening this will build better relationships between people living with sickle cell disease and providers in the ER or Doctors office.
Programs
Advocacy and empowerment
In 9 monthly workshops, we bring together SCD clients, advocates, and health care workers for wide-ranging learning. Themes include strategies for Emergency Room visits, resiliency through mindfulness, and self-advocacy.
Client’S Assistance Program
In times of crisis, we will be able to provide temporary assistance for you to support you as you move on in life.
Educational Outreach Program
Holiday Giving Program
Over the holidays, SCAASF will be distributing gifts to families living with sickle cell and also the SF Fire Department Toy Drive from your donations.
Intake and Assessment Program
SCAASF offers an intake and assessment program to prepare our sickle cell clients for many different situations that they may need to go through and to lend a hand in times of crisis.
Plan Well Care Course
The Pull Up Experience w/ Calvanay Nunley & Cayenne Wellness
We host open forums for clients and their families to share and learn from each other with a focus on self-advocacy. These quarterly meetings focus on the sickle cell community and give a platform to strengthen each other and exchange experiences.
Activities Offered:
At camp we introduce our youth to out door’s activities such as rock climbing, zip lining, horse back riding, archery water sports and arts and crafts. We have s’mores at the camp fire and a thriving dance party at the end of camp with a live Dj and a theme. We also like to keep the kids hydrated and crisis free by challenging them to a friendly competition of Water Wars. Which cabin and camper can drink the most water its a healthy way to prevent crisis by keeping them hydrated and crisis free. Their always excited about water wars. We host and award ceremony at the end of camp and also teach sickle cell education done by Sickle Cell 101.
Qualifications to Join Camp:
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Must have sickle cell disease and be between the ages of 7-17 years old
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Must be fully vaccinated. We follow all rules and guidelines pertaining to COVID-19.
Age Range and Leadership Role:
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Accepting kids between the ages of 7 to 17 years old
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Acceptation of becoming a CIT (Counselors in Training) at the age 16
Camp Grounds:
Our Camp Site is always located at The Taylor Family Foundation in Livermore, CA. Our cabins are heated with heated floors and also a heated pool. We have all accommodations met for the needs of children with Sickle Cell Disease. The Taylor Family Foundation supports many medical Camps in Northern California.
Does it change each year or the same place all the time?
In the same place every year, we first meet at UCSF Benioff Children’s Hospital in Oakland, CA. Afterwards, we take charter buses filled with campers and counselors out to Livermore, CA.