Tuberous Sclerosis Alliance (TSC Alliance)

Information updated on Thursday, February 9th 2023, 10:09
Services
Disability Awareness and Advocacy
Libraries, Books, Magazines
Online Learning - blogs, resources, webinars, apps, telehealth
Parent to Parent Support - Information, Referral, Mentoring
Research Institute or Funding
Support / Self Help Groups

The Tuberous Sclerosis Alliance is dedicated to finding a cure for tuberous sclerosis complex while improving the lives of those affected.

The intertwining arcs represent an abstract of the double helix or the structure of DNA. The spiral also shows that the TS Alliance’s commitment to family and patient support, education and research are interdependent.

The lower arc signifies shelter and a place for people to congregate. It symbolizes the bridge from where we’ve been to where we want to go. It’s structure reassures us that it will always be here, for as long as we need it. The upper arc shows arms reaching out to people, to knowledge and to progress.

Get Immediate Support

For those newly diagnosed with tuberous sclerosis complex or have a medical question, contact Ashley Pounders, MSN, FNP-BC, Director of Medical Affairs at 1-800-225-6872 or 301-562-9890 or email her at [email protected]

Local number: 301 562-9890

Publications
TSC Awareness Cards
Brochures and Books
Perspective Magazine
Life Stages Guides and Personal Journals
White Papers
TSC Research Article Summaries

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