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Angelman Syndrome Foundation

Information updated on Tuesday, July 18th 2023, 12:07
How to Contact the Provider
Contact email
[email protected]
Address
3015 E. New York Street Suite A2 #285, Aurora, IL, 60504
Phone
800-432-6435
Web
https://www.angelman.org/
Services
Disability Awareness and Advocacy
Online Learning - blogs, resources, webinars, apps, telehealth
Parent to Parent Support - Information, Referral, Mentoring
Research Institute or Funding
Therapists: Individual Counseling

What is Angelman Syndrome

Angelman syndrome (AS) is a rare neuro-genetic disorder that occurs in one in 15,000 live births or 500,000 people worldwide. It is caused by a loss of function of the UBE3A gene in the 15th chromosome derived from the mother.

Angelman syndrome shares symptoms and characteristics with other disorders including autism, cerebral palsy and Prader-Willi syndrome. Due to the common characteristics, misdiagnosis occurs often.

People with Angelman syndrome have developmental problems that become noticeable by the age of 6 – 12 months. Other common signs and symptoms usually appear in early childhood like walking and balance disorders, gastrointestinal issues, seizures and little to no speech. Despite these symptoms, people with Angelman syndrome have an overall happy and excitable demeanor. An individual with AS will light up a room with their smile and laughter.

For Parents

No matter where you are in your Angelman journey, the ASF is here for you.  The ASF has been dedicated to supporting families for over 25 years. If you have questions, we have answers or know where to direct you for answers.

Below you will find groups and resources that have been created JUST FOR YOU – a caregiver to someone with AS.

ASF Family Resource Team

The ASF Family Resource Team, a group of experts in their respective fields of education, products for AS, insurance and medicare).

Each member of the team has a family member with Angelman syndrome.

ASF Family Champions

It’s important to connect with others who understand the joys and challenges of raising a child with AS. The ASF Family Champions are parents who have volunteered for others to reach out to ask questions, vent frustrations, share joys or just talk.

Counseling Services

The ASF offers counseling services at no charge to Angelman families in the United States for help with (but not limited to): caregiver stress, substance abuse issues, self-esteem concerns and more.